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aiws


The world obliges me to do something, so I create.
 Society wants me to belong, so I observe.
People force me to react, so I rebel.
They want me to stay still, so I paint.
Life requires me to live, but I am dying. . .

Play based learning  + way to deal with anxiety part 1

21/9/2018

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So... I haven't wrote a blog post in near two years. Wow. Guess life was pretty busy, moving to the states, getting married, working on my art and mental health... 
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Anyway, I feel pretty compelled to write about these logic games from "smart games". 
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First time I got to try them was when my partner got me one to occupy myself while I was recovering after the surgery. I played it every day! 
Soon we got another one and another.... 
While I see many benefits to these games in this post I want to concentrate on two of them:
How these games are an awesome educational addition to learning process and how these games can help to deal with anxiety. 

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There are moments when your emotional brain completely takes over your thinking, that's not the time to start playing logic games. At those times you need to engage in self-soothing, surround yourself with lovely and soft things, toys, stim, eat nice food, drink tea... 
But there other times, when you are already feeling better or when you just feel the anxiety attack coming, personally for me playing these games on these moments really helped. They took my mind off the things I was extremely anxious about and let concentrate on solving problems presented in the games. 
There are many techniques out there about different approaches to this. Counting in your minds, writing down every prime number, saying every animal who has no letter A in their name, etc. etc. Everyone needs to find the way that is the best for them. The reason why I really like to use one player "smart games" for this is because I can actually touch them, the problem is right here in front of me, so I don't need to use my already overwhelmed brain to keep the imaginary picture in my mind. Even if for one moment I loose it, it's still here, right in front of me.
Another reason is that there are so many different themes! I am obsessed with animals, so any game with animals is going to get way more attention from me than the one without. For example we have a game "Jump In" and there are rabbits and foxes. The goal is to get all rabbits presented on the board into the holes. At first I was worried that I will have to try to "protect" rabbits from the foxes, but no! in this game foxes are actually helping rabbits to get home. I love it!! 
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One day I was so stressed to leave the house and go to the zine fest. I was mentally prepared, but then I felt anxiety just rising and rising. Luckily I was able to remember the distraction technique and just sat on the couch, choose of the challenges from the "Penguins On Ice". As soon as I was finished, I felt so much better. Instead of going over and over my fears, instead of over-thinking everything I chose a perfect distraction for my minds. This is just one of the examples, but in the last months there have been many! 

That's only a couple of reasons how these games can be a perfect distraction for autistic children and adults. 

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Motivating students to learn can be tough. I wish we had these games in my school. And while I think these brain games would benefit any learner, I would like to concentrate on how these games could really help engage cognitively, mentally or intellectually disabled students. 

I am disabled myself and it is very frustrating to see so much articles or tips on disabled students learning are not concentrating on their actual learning, but rather on trying to make them "pass" as neurotypicals or non disabled students, meet "boxed" standards or to keep them quite. The concentration is almost always on neurotypical teachers, parents, sibling or other students (even if it's hidden using pretentious language, acronyms or words majority never even heard about). 

I love play based learning, especially if it's child lead play! We usually see the examples of neurotypical teachers always being right and disabled children either pitied or always being wrong. There is really a need to see more examples of educators accommodating different types of learning! 
That's why these logic games can be used as one of the tools to support math, STEM, visual discrimination, etc.. All challenges increase in difficulty, so great tool for different levels. 

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I received four of these games "Penguins On Ice", "Quadrillion", "Trucky 3" and "Color Code" from Tryazon featured Smart Games party. I was a huge fan of logic games before this, so I want to thank them for choosing me to try these games, share them with others as well as write my opinion about them. Thank you. I honestly wish for more opportunities like this. 

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what's wrong with ABA?

12/11/2016

8 Comments

 

So what's wrong with ABA? Shortly: EVERYTHING.

And this post explains a tiny part of why it is unethical, harmful and damaging therapy.
In this post I will be talking about and/or mentioning ableism, dehumanisation of autistic folks, ABA therapy, behaviour therapies in general, institutionalised abuse, gaslighting.

Let’s make it clear from the very beginning: Applied Behaviour Analysis (ABA) is an institutionalised abuse against autistics.
There is NO not always, there are different kind of ABAs, some people need it, it’s for a better. It is an abuse. Period.
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Firstly I want to say that if you are pro ABA you are part of the problem. If you get all defensive once autistic people call you out and if you say shit like “but now no one uses electroshock on autistic children”, “my ABA is different”, “it’s not all that bad”, “it’s for the better”, etc. you are part of the problem. If you defend people who use ABA because “they might not realise how damaging it is”, you are part of the problem. If you think that there are two sides of this, you are part of the problem. If you think that behaviourist voices are as equally important on the matter as autistics you are part of the problem. But let me say that so far actually autistic people are barely listened anyway, we have huge organisations such as autism speaks talking over us all the time.

Nowadays lots of people tend to believe that there are two ways of doing ABA, one is “bad” aka outdated (using electroshock, locking up children in tiny cupboards, using physical punishment, etc.) and the other is “good” aka progressive (not beating children up, uses positive reinforcement, etc.)
And here I can’t stop my sarcasm “oh wow, you are so kind. You don’t beat children up. You use more sensible ways to abuse them. Such a hero… “
Okay, I am more than aware that ABA therapists can be and most probably are nice people and don’t use many things used in the past (you know we fought for the basic human rights for disabled people too and giving electroshocks to children because they rock, clap their hands too often or don’t look right into your eyes is simply unacceptable. Still there are places where children on the spectrum are getting electroshocks in the name of the behaviour modification !!).

Anyway, the main problem still stays. ABA is an abuse. ABA breaks autistic children and reinforces the idea that they are broken, wrong and need to be fixed. That only by acting in one certain, someone’s else’s demanded way they will be accepted and loved. The only right way is obviously the neurotypical way….

To better understand ABA we can look back how it was created, for example this is the quote from its founder Lovaas who even didn’t believe that autistics are human beings: “You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense - they have hair, a nose and a mouth - but they are not people in the psychological sense. One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.”
I believe that majority of ABA therapists or anyone in that matter who engages or promotes ABA have never even heard of this quote, but still this quote is a core of how ABA works.

So, what is the purpose of the ABA? Simply to “normalise” autistic child’s behaviour, in other words to make them appear as neurotypical as possible. Like any behaviour therapies ABA is not about teaching, understanding or supporting, it is about behaviour modification.
This kind of training is not only highly unethical, but also often becomes dangerous. Therapists are not trying to understand autistic people’s experiences, but to modify and change them. Not even for the welfare of an autistic person, for the comfort of the society! If one has any kind of behaviour that seem “obsessive”, “repetitive” or in any way not understood by the neurotypical people around them, then behaviourists try to change these things aka make the autistic child to look less autistic. They even call behaviours desired and unacceptable. Desired behaviour is the one they want to reinforce, such as looking into eyes, and unacceptable behaviour is the one they want to get rid of, such as repeating things over and over again.
These are just a few examples of what could be called unacceptable behaviour:
Stimming, rocking, getting too attached to things, flapping hands, talking about the same thing too many times over and over again, not eating certain foods, not being able to touch certain textures, using echolalia, repeating sounds, having an intense interest especially if it’s not seen as typical, not making eye contact, covering ears, walking on tip-toes, not playing with specific toys in a specific (someone else’s desired) manner, the list could go on and on….

​Basically anything that behaviourists would see as “inappropriate” and “not acceptable” would need to change or be stopped. One of the biggest problems is that these kinds of approaches completely ignores the fact that everyone has a reason for doing something. Just because someone else doesn’t understand why a child is flapping their hands or covering their ears or any number of other things, that does not mean the child has no valid reasons for doing so. And if sometimes certain actions might harm an autistic person, instead of looking into what has caused stressed and if there are other ways to get the sensory input, ABA stops the action, but not its cause. That way just further sending the message to an autistic folks that their feelings and emotions are not valid, that their needs are wrong and that they in general need to change in order to be loved.
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Okay, I am going to stop my rant about ABA here, even if I could go on and on, because it is just so horrible!  

I just wanted to add another autistic voice to so many others who speak against it, not that it is going to make a big difference, because we are not heard and everyone else thinks they know better what we need and how we should live.

If you are not sure where you stand on ABA, if you engage in it in any way, if you support it, if you think it can be helpful, if you believe that there are good ways of doing it, you are making it harder for us to live in this world and to advocate for ourselves.
It doesn't mean that you hate autistic people, probably you even believe that you are doing good, and it makes you feel good too to patronise and “rescue” these poor disabled children. But no matter how good your intentions are, it still means that you believe, contribute or maybe even promote the idea that dehumanisation of autistic folks is acceptable. You not only normalise daily abuse, but twist it and call it “help”. You make my and many other actually autistic people’s lives a living hell. I rather you listen to autistic people and survivors of ABA speaking up and stop suggesting that #NotAllAba … or that we should hear both sides. So far only one side is widely heard - and it is not my side.. It is also really cruel to ask that a survivor/victim would empathise with their oppressor and hear the other side. Just STOP!

Thank you for reading. Also thanks to everyone who wrote supportive comments and messages on my previous post, I really appreciate that. Thank you.

Now two links:
If you want to support my work, you can do it here, it will help me to concentrate on creating art and writing: https://www.patreon.com/AIWS

This is an article from Life Magazine (year 1965), a massive trigger warning for this especially if you are an autistic person. It is talking about “the newest most effective treatment for autism” (aka ABA therapy) and includes abuse, torture and dehumanisation of autistic children:
http://neurodiversity.com/library_screams_1965.html
They have much more readings on the history of research and behaviourism of autism. It’s really terrifying, I don’t know why I keep reading it.

Copyright © Lex Kartanė
All rights reserved.
​
All works are copyrighted and not to be used without the permission of the author.
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world mental health day 

10/10/2016

18 Comments

 
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​CN: ableism, dehumanisation. ​

Today is world mental health day. 

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I wanted to write a nice  and positive blog post about mental health, how important it is, how everyone matters and how harmful is not to take it seriously. But this morning I read a very upsetting article and decided to once again write about autism. 


​So I read supposedly inspiring and positive article about a mum of an autistic child who is struggling to express themselves (not my words) and how his diagnosis changed the whole life of this brave woman. In this article they also talked about how challenging her child is, and how strong and brave she is to put up with that. How she is an inspiration to all of us and so on. The end of the article was even worse, they claimed that having an autistic family member is a huge burden, how drastically it changes one's life and how they, on this, world mental health day, should firstly look after themselves, because they will never get appreciation or love back from their autistic family members. But seeing any smallest progress can brighten their day. (like you know, autistic people don't exist for their own reasons, but just to brighten someone else's day....) They said how sad and hard it is for her  to see her child being happy playing on their own with dinosaurs and having meltdowns while around other children. How she feels that this child will never love her and all they want to do is to share the facts about dinosaurs instead of more socially acceptable topics. And more ableist bullshit. 
Firstly I felt quite shocked, as i thought that we, as society, already moved away from the idea that autistic people are emotionless individuals, never expressing any kind of appreciation towards others... I also felt super angry as, like always, majority of articles written on the subject talk how hard is for people around autistics and how thankful we should be that they put up with us. This is so really helpful (oh, the sarcasm), especially when you already feel like everyone secretly hates you. Yeah right, thank you so much once again for telling me that my own existence is a tragedy and that I am the cause of everyone's pain...

I was also thinking why I rarely see articles about how hard is for autistic people to live in the world that does not want to accommodate our needs, in the world where we are expected to fit into someone else's agenda and most of the time no one even tells us what this agenda is. Be yourself they say. But this "be yourself" also has certain expectations attached. : / 

What is even more sad, that very often so called progressive people comply to the same agenda and while claim to be on autistic people's side, still adopt the very same dehumanising tactics. 
Do they even think how these articles affect mental health and well being of autistic people? All this made me to think more and more about such remarks towards neurodivergent folks and the bigger impact they have on our lives.
Growing up in neurotypical ableist world from a very young age we are socialised and “trained” to believe that there is only one way of being, only one way of doing things right. 
It is not acceptable to stim in public.
It is not acceptable to cry in public (there are exceptions to this though, like a funeral or tragic news).
It is not acceptable for an adult to carry toys around (unless they are acceptable type of toys).
It is not acceptable to seek sensory comfort in public places.
It is not acceptable to freak out in the crowds.
It is not acceptable  to lay on the ground if there are other people around.
It is not acceptable to hit your head into the wall.
It is not acceptable to wait hours for the bus that is not crowded, so others would not touch you by accident.
It is not acceptable to separate your food.
It is not acceptable to touch every object on your way to the bus stop.
The list could go on and on, every day there is a new rule of what is acceptable and what is not. What you are allowed to do and what not. Every rule has dozen exceptions and additional information that depends on the particular situation, environment, people involved and many other factors. You are not only expected to memorise them all, to create scripts for every single possibility, but also to act "naturally" and do not draw any attention to yourself.
It is exhausting. It is very exhausting. 
And if even a smallest detail goes wrong, we are reminded that by default it is always our own fault. 
I am wondering why these people don't write about this. Why don't they write that we should deconstruct the underlying assumption that we have to please others. Why don't they write how damaging for one's mental health is to grow in the world that every day keeps telling us that there is something wrong with us and that we are burden on society....
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I'm not saying that parents mental health is not important. Obviously it is. I am saying that to care about one group's mental health you do not need to harm other group. 
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Copyright © Lex Kartanė
All rights reserved.
​
All works are copyrighted and not to be used without the permission of the author.
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I'm not your next charity project

2/4/2016

20 Comments

 
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2nd April
Autism (Awareness) Acceptance day.
In this post I'm talking about autistic people, but most things can be applied to any neurodivergent person, also will be mentioning and briefly discussing ableism, objectifying of disabled people and inspiration porn. 

Today is the day when almost everyone feels the urge to "light it up blue", share some so called inspirational stories showing that autistic people - surprise - are human beings too, show their sympathy to the families "affected" by autism or even better talk about how together we can "beat autism".

All this just makes me want to throw up - meaning today I will avoid social media and won't login into facebook, twitter or any other social media to avoid all the horrible, even if good intentioned, messages these posts are sending. 

I already wrote many times about organisations like autism speaks and the only message they are communicating is that being autistic is the biggest burden or having an autistic child is worse than to loose one.
Let me clear it again - groups like autism speaks do not speak neither for me, neither for any other autistic person I know. The only thing they do is talk over actually autistics, silence us and never listen when we raise our concerns. 

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There is no point even trying to engage with them anymore, as well there is no point engaging with these people who share anti-vaccine bullshit believing vaccines cause autism (irony: what a tragedy!) or these people who feel sorry for the families with autistic children...There is SO much info out there why ideas like these are harmful and how they affect real people in real life, just do your research. I'll put it shorty here anyway: it reinforces the idea that autism is a tragedy, that the world would be so much better place without autistic people in it and contributes to the already existing stigma. It hurts me. It hurts other autistic people. Basically it makes my life more difficult and makes me feel like I have to keep apologising for even existing, taking up space and many other things. You know, everyone should feel sorry for me and I should have never existed in the first place. If you care even a little bit - stop doing it. right. now. 
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Okay, this time I actually wanted to write about so called inspiration porn as it is another thing that harms actually autistics every fucking day, and as most people seem to care about "beating autism", "finding a magical cure" and just in general "helping autistic people", maybe it's time for them to listen and actually do (or rather stop doing something)?

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The term inspiration porn describes the fact that disabled people are seen as inspirational because they are disabled and/or are here to inspire non disabled people to be better human beings. I can think of a few most common examples:
*Neurotypical person is being friendly and not that shitty to an autistic person. This is seen as SO inspiring!! like wow! this person is basically a hero because they don't hurt, insult or completely ignore an autistic person. Autistic person is used to show that the other person is kind hearted & good, taking away autonomy from an autistic person - nevermind in the end of the day, we are here to please non-disabled people and show how nice they can be, right??
*Autistic person does something random, something most people are capable of, like goes to the school, rides the bike, goes to the shop, etc. etc. and it is so inspiring because autistic people are apparently not capably of literally anything. It is also used to stigmatise and put other people, especially children down (e.g. "look they are autistic and they are able to ride a bike, when will you learn??" or "even that autistic child got an A from an essay, what is your excuse now??")
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*Autistic person does something extraordinary, something 99% of people wouldn't be able to do, like discovers a new constellation, goes to space, invents new type of machine, paints a masterpiece, etc. and it is so fucking inspiring, just not because of the actual action, but because the person is disabled.
Let's face it - we exist for our own reasons and not to please, inspire or what-ever-other-fuck to do with non-disabled people. This sort of objectification is really really fucked up. ​​It takes away our autonomy completely leaving us just as objects to please other people needs. We are already enough objectified, and if our needs, aspirations and ideas do not fit into society's concept of us - we are completely ignored...
I want to believe that people sharing these stories are just ignorant and think they are doing good. 

If you are one of these people for goodness sake - STOP! just stop doing it. There is nothing inspiring or nice in participating in these oppressive activities. Autistic people are not your emotional merchandises!! These superficial praises are extremely patronising and nothing else just a tool of oppression silencing us even more, just this time in a less visible way. 
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(By the way, I'm not saying you shouldn't find disabled people and their work inspiring. But if your inspiration comes from the fact that we are disabled by the society and you are not, that we manage to do things you are able to do too, that we manage to do things you are not able to do and the fact we are disabled surprises you or you feel that having a disabled person as a friend will make you more progressive, better person - you are the part of the problem. If you want to be a better ally, unlearn your ableism and objectification - go for it. Don't expect your autistic friends to educate you, do your own research. 
By the way I'm an artist and I actually want people to be inspired by my ideas and artworks, but because they really like them and not just because I'm disabled by this society.

Copyright © Lex Kartanė
All rights reserved.
​
All works are copyrighted and not to be used without the permission of the author.
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disabled or differently abled?

2/2/2016

4 Comments

 
content: ableism, patronising of disabled people, discussion of the term "differently abled" 

For quite a while I was thinking about the term "differently abled" that sometimes is used instead of disabled. I haven't really used it myself, but heard lots of progressive people praising it and being so happy about "different abilities". From the first sigh it might look like a great term - concentrating on the positive instead of the negative, but taking a closer look into it we can realise how deeply problematic it is. First of all - different from what? Isn't everyone different in some ways and has different abilities? Using the term "differently abled" actually reinforces the idea that there is only one way of being. One "correct/right" way of existing, thinking, communicating, feeling, moving - you name it. Everything else that does not fit into someone's imaginary normality is classed as "different" "abnormal/not normal" (it is used to refer to disabled people in this case). Obviously that way even further contributing to patronising, stigmatizing and dehumanizing of disabled people. It does not matter how much one wishes or believes that the term might suggest that everyone is different and just exists in their own way, it does not. It rather suggests that there is one "acceptable" way of being and the other "different" "not so acceptable" way.

It also has the same patronising tone as the term "special needs", "challenging" etc. and suggest that being called disabled should be something to avoid, something to be ashamed of.. Many times these terms are used as more of a way for those non disabled people (who in most cases lead the discussion about disability) to feel better about themselves and deny (consciously or non consciously) any chance to answer the questions leading to acceptance instead of this tolerance. Disability makes them uncomfortable. It's like saying "at least they (disabled people) are not completely useless, they are good at something too" and continues the association of one's worth to exist with ability to work, be "functional", contribute to the society.
World still thinks that my existence is tragic, not worth living and keeps reminding me how many times harder I have to try to be given the right to exist, to take the space, to talk...
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The term "differently abled" does not only understate, but in many cases even ignores the reality and struggles disabled people have to go through their daily lives. It denies the impact of systematic oppression and suggests that disability is one person's problem rather than society's. Why should we let the society ignore the fact that they are disabling us and comfort to their patronising tone? 
Society already does a very good job at ignoring the systematic oppression and ableism. And by refusing to acknowledge that we are disabled by the society's lack of accommodation to our physical and neurological differences from so called typical minds and bodies, we are letting society to know that they do not need to look at the ways they are making us disabled. Disability does not exist on its own. We have to realise that disability is a complex interaction between social, cultural, political & other structures and individual's minds/bodies. It is institutional, systematic and personal ableism that creates disability. And we don't need to deny it exists. 


So yeah, that's why finally I decided that I won't start using the term "differently abled" as this language only helps to reinforce already existing oppression of disabled people.
Copyright © Lex Kartanė
All rights reserved.
​
All works are copyrighted and not to be used without the permission of the author.
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making friends in the NT world

2/8/2015

1 Comment

 
Yesterday me and my friend L were sitting by the Thames and talking about life, universe, how to make friends (or more likely how differently we actually do that) and everything else. We even talked about my blog (this one and the other one I used to write years ago), apparently L reads my blog (other people do that too, and sometimes they even write to me. It's still difficult to believe, but hey!), so I promised to write another post. This time it's about making/having friends and problems with that. 
This post is for you, L! <3

(My previous posts about problems autistic people face and how you could support your neurodivergent friends you find here and here and here and here (but they are quite old, so my opinions might have changed a little bit) in case you interested.)

Also I wanted to make sure that I do not intend to represent all autistic people and do not talk for anyone else. This post mostly reflects my own personality and experience, but at the same time I feel kind of happy to know that there are other people who feel the same way I do and we can connect to some extent.
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So here we go.
Communicating with people is difficult. Forming connections is even more difficult. So it does not come as a surprise that making and having friends is complicated too. It does not matter how many times I told myself that's it, I'm not going to have any friends and will be emotionally de-attached from humans (less feelings, less pain), it never works.
Bellow you'll find some of the things that make having and maintaining relationships difficult for some autistic people. 

The need of confirmation.
I'm desperately looking for any signs that my friends are actually hating me and are just too polite to say that. I know it's irrational and makes no sense, but it does not stop me from living in a constant fear that very soon my friends will leave me. For example if someone promises to write me an email the next day and they don't, I start panicking and thinking that they do not care about me at all, because if they did, they would keep their promises, right? I know people forget things, there are way more important things than me in their lives, personal things happen and so on... Still this is SO triggering and also sometimes makes me to do stupid things I probably regret later. 
I used to ask my friends almost all the time if they were still friends with me, if they were angry at me, if they still liked me and why. I still do that, just trying to keep it to the minimum. Apparently I shouldn't ask those questions as that upset others. I should just see how things go and feel where we stand on our relationship. Well, I'm not able to read people's mind and can't really see how things are going, so I desperately need the confirmation from my friends that they still want to be my friends and nothing has changed...

Feeling worthless.
World keeps telling me that I should know my place. Also I should be more than happy that I managed to meet someone who likes me even a little bit and formed some sort of relationship because that is way more than most autistic people manage to do (according to neurotipicals of course). Basically what they are saying is that I'm so useless that no one ever will be my friend for real. Even if in theory I know that this is not true (it's only those horrible people who want to control everyone giving their opinions), it still hurts. But world keeps telling me this again and again, so I almost believe. All this adds up to the feeling that no one really cares about me and my friends hang out with me out of pity or something like that. I try to prove myself and be useful really hard. It's actually quite dangerous as people might take advantage (and they often do). To partly prevent that I created my own friendship rules, and built other possible protections... But actually I feel that puts nice people off, as I come across as too complicated and arrogant or making friends with me seems too difficult. 

Nothing in between.
I desperately keep looking for this mysterious "in between", as all I do seems to be too much or not enough. I'm extremely emotional and emotionally unstable (just it's not really visible to others most of the time). You know that thing when you are not very expressive and keep everything inside you, so no one actually knows how deep you feel everything. And I mean everything. Lack of knowledge what other people might want and expect pushes me to extremes. I come across or as too attached or as too distant from others (more likely distinct especially in the beginning). Obviously both are seen as not good enough (remember, there is only one way of being and if your actions don't particularly fit - you are a freak). I never know how much attention is just right, I'm not sure how much communication people want to, should I write to them first (and what if they do not want me to)? or should I wait till my friends will write to me? And when I do write first, most likely I've spent a few hours before getting the message just right, not too emotional and not too cold. And those rare times I actually send emotional emails to my friends I regret doing so the very same moment and just wish I could turn time back and press the delete button instead... 
All this confuses others as one day I might be giving lots of attention and the next day (after hours of thinking and reflecting, deciding that no, it probably was too much) keeping the distance and needing space from them. 

Physical contact.
This one is very tricky. I do have lots of sensory issues, so almost any unexpected physical contact causes me an actual physical pain. But I like holding hands with people I really care about (especially if there are lots of other people around) as it lets me to concentrate on one particular action. I also feel scared and lonely in this world most of the time (let's start with not being able to connect to other people the same way they do), so holding hands seems to be one of the safest ways to confirm that at this very moment there is someone who cares a little bit about me and if something will happen I won't be on my own. Or at least that's meaning I gave to this gesture. I search for meanings everywhere, and I'm more than aware that for most people close physical contact have very deep sensual meanings. Unfortunately it makes me very emotional, so I'm struggling to decide if my friends are trusted enough to be emotional with. There is also this fear that if I'll get close to people they will use it against me later. 

Not being able to express myself properly.
This is so hard, especially as I want to say so much to my friends, but when it comes to putting everything into words, I fail. Sometimes (often) people get upset and angry as they think I kept things away from them, but the truth is I just don't think about bringing those topics unless specifically asked. Even when specifically asked I might not really be able to discuss them in full due to the lack of preparation to make a proper script. Many times I do not really know what I want before someone else voices it loudly. It's already complicated to pass (gosh, how much I hate this word actually) in every day situations, but when it comes to deep and long conversations with close people it becomes even more complicated. I also mentally rehearse future conversations with my friends. It's probably not fair on them as part of my every friendship  s based on things and talks that have never happened real life...

Over-thinking.
Analysing everything all the time. Sometimes I create problems in my head that never existed, but it actually helps me to see the point in relationships and how much they mean to me. For some reason over-thinking and analysing things annoys others. It has this attached negativity how analysing everything will make one miserable. It actually partly makes me happy. I go again and again through different moments and conversations in my head trying to connect things and put meanings to different actions (or just thinking about moments I like). Sometimes it's relaxing. Sometimes it helps me go back to reality and see that I idealise my friends way too much. But also I keep reminding all mistakes I did and how I could do much better! I am more than aware of every time I said something wrong, hurt others or was not able to give them support I intended to. And I keep reminding that to myself again and again...

I'm more than aware that sometimes it takes more effort for NTs to form friendships with neurodivergent people, but I tend to blame society for that. Society that gives only neurotypical-neurotipical desired relationship models. All relationships that involves neuroatypical person portrays NTs as some sort of heroes (because who else would want to have a friend considered less human by society's standards?). And that is so wrong! 
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Photos were made somewhere in South West London and they perfectly reflect the way I feel. 
Broken. Destroyed. Abandoned. Forgotten. 
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Happy Autistic Pride Day!

18/6/2015

2 Comments

 
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So, today is the international Autistic Pride Day. On this day we aim to celebrate autism and finally put more and more focus on the neurodiversity. (just a couple of days ago I was interviewed by Anti-Speciesist Women about neurodiversity and how social justice movements could be a little bit more inclusive, that you can read here). 
We live in the world that wants to acknowledge only one way of being - neurotypical. Everyone else who falls under the neuro-atypical umbrella is seen as not valid. Obviously, our society is very ethical, so we are allowed to exist. Thank you for the permission, very kind of you. Autistic people are also part of the neuro-atypical scale, so yai!, at least we fit somewhere. 
I think it's really important that everyone who is not on the spectrum takes a step back and listens to what actual autistic people have to say. There are autistic people out there (what a surprise, autistic children grow up and become autistic adults) and we have a lot to say, but the world does not want to listen to our thoughts. 
The biggest problem is that neurotypical voices are much louder than neurodivergent. They market their message better. Society not only patronises autistic people (and actually everyone who is not NT), but as well dehumanises us. Autistic people are seen as broken, wrong, less humans... It's difficult as hell to speak up when all your life you were shunned and told that there is something wrong with you. 
They tell you you have no future. They tell you that everyone else knows better what you need, even when they are wrong. They tell you are a mistake. Actually the biggest mistake in this planet. And you learn to believe them. 
But there are more and more autistic advocates who spoke against organisations like autism speaks, harmful therapies like ABA and the search for magical cure. I'm not going to go into more details why those things are harmful and why autism speaks does not speak for autistic community, maybe use google or ask if you really can't find. 
There are more and more autistic people who speak about their experiences, ideas and sometimes we are even heard (thanks to the internet). 
So, what if autistic people do not want to be cured? What if people with brown eyes want to stay brown eyed? What if your message that people suffer from autism is not only a lie, but also causes lots of harm? What if there is not only one way of being or thinking? 
I'm wondering what would happen if one day people would stop pushing their harmful views on others and dictating everyone around how to be. Would the world come to the end?..
Shouldn't everyone just start challenge those structures and ideas? 
Oh, and there is something else I wanted to say. For some reason majority of people tend to believe that autistic people have no imagination. How far from the truth is it! The world in my head is much more real and much more interesting then the one I'm forced to live in. Sometimes it's so awesome that I have troubles staying in this one, and not because I do not respect people around me, but because in my own world the conversation we are having right now has finished a while ago and we did lots of other things in between. And it's not only me who thinks so (about the wild imagination), most of autistic people I heard talking said something very similar. 

P.S. in case you missed, there is a kickstarter campaign running right now to get my next picture book about neurodiversity published, so you can go HERE to support my work and pre-order the book. Yeah, I'm very pushy: https://www.kickstarter.com/projects/aiws/the-girl-who-didnt-know-how-to-be

I said it once, but will say it again. My problem is not me, my problem is the world that can't stand the fact that not everyone is the same and not everyone has to fit into the fucking patterns someone created to control the society. 

HAPPY AUTISTIC PRIDE DAY EVERYONE! 

Copyright © Lex Kartanė

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All works are copyrighted and not to be used without the permission of the author.
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Mūtātiō, Köln and my exhibition

13/5/2015

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I had such an amazing time in Germany, thanks so much to everyone who came and shared their thoughts with me on Saturday! You people are incredible! I was so scared and terrified that something will go wrong. That people won't understand my artworks and like most of the time I won't be criticised for what I should be, but will experience personal attacks and my ideas will be torn apart. It didn't happen (ok, there were a couple of people who said nasty things, but who does care about them anyway when you have many supportive people around?). It was one of the best days in my life! 
Hello world. 
I just had an exhibition in Germany and still feel over excited about how great everything turned out. So bellow You will be able to find some information (mostly pictures) how it did go. 
And here you can read a proper introduction to the series Mūtātiō
It's so important to talk and connect different issues. Every single piece of Mūtātiō questions gender constructs, looks much deeper into the transition process as well as carefully touches a huge inequality between species. We live in the society where is vital to question our own superiority and realise connections in this huge intersectional, sometimes broken, spider web. World pushes its own morals and ideas, not leaving enough space to reflect our lives, ideas or question one's status quo. But we must stop and think. We must stop, feel and realise that not everything we were told is true. The world is not only black and white. The whole life is a grey area. The obvious might be hidden, but we need to look deeper to realise it. 
You do have a voice. Don't let them silence you...
Special thanks to my parter in crime Theresa for all the wonderful help and support. Talking with you, sharing ideas, planning the future and discussing things made life so much better and easier. Thank you for believing in me and interpreting my works. You are AWESOME (I'm awesome sometimes too). Hope we'll be able to share much more art adventures in the future! 

To all my friends who came all the way from different cities and different countries. Love you all! Thank you for being here and sharing those great moments with me. 
Shout out to all the fantastic human beings I met, it was so much fun to share my ideas with you, can't wait for next time!
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As the space was huge I decided to use one of the walls as a conceptual space and do something different. 
I even felt like being at university again, just this time I was the one making all the decisions and there were no teachers you need to please. All the time I was surrounded by most encouraging people who believed in what I'm doing. 
I was not sure how visitors are going to react to this exhibition, as like always, my art is SO controversial, metaphorical and philosophical... Through my art I talk about things that make society uncomfortable. Very uncomfortable. You can't find answers to the questions and after looking and investigating end up having more questions. That's what art should do - make one to think and question.
It worked very well and we ended up discussing about life, universe, inequality and our own experiences. 

Thank YOU everyone who wrote (and drew!) into my book and shared your personal feelings, emotions and thoughts with me. 
My art (and sadness) is everything I have, so sharing it with the rest of the world, getting so much positive feedback and being able to talk with people who can see and feel more than just a beautiful picture made me extremely happy. 
I feel inspired and want to do so much more! I want to be able to leave something with a meaning, something much bigger than I am, much more important.. So people could remember my works and still talk about my ideas after I'm gone. 
I DO NOT WANT GO BACK TO THE REALITY! 
Copyright © Lex Kartanė

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All works are copyrighted and not to be used without the permission of the author.
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2nd April - Autism Acceptance Day and why I'm not going to light it up blue

1/4/2015

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Oh well, another year has passed by and here we are... facing another Autism Acceptance Day. 
The day you forced to remember autistic people exist, world telling that you should tolerate them and see beyond their autism, because everyone is so unique! (sarcasm) 
Also it's an opportunity to pat yourself on the shoulder - another good cause, another good work...
Blah blah blah, that's not what actually autistic people need. Fuck your stupid tolerance that indicates there is something wrong with a person. There is nothing to tolerate and nothing not to tolerate. It's not that you have to like every autistic person or every neurotypical person, is it? If there is something you don't like and it bothers you so much, how about you just move on with your own life? Maybe, just maybe, if you do have a problem with someone's needs, likes and dislikes, it's because there is something wrong with you and not with them? 

Autism is nothing to be tolerated, feared or praised, it's just a neurological difference. And most of problems autistic people face on their every day lives were created by society. The same society that believes everyone should act in a certain way and fit into someone's imaginable normality. 
But how would you feel left on your own in a foreign world where everyone looks like you, but is so distinct at the same time? Where everyone speaks the same language, but it's so different from the one you used to? Everything you do is wrong. Everything you say is insane. And every time you try to ask, every time you try to learn their language or find out why it's done one or another way, they ignore you. Why can't you just be like everyone else and create problems out of nowhere?.. Just be yourself. Just not that way you are actually - that different kind of way - the way that makes others comfortable. 
But does it get better? I ask this question myself every day and no, it doesn't. Wish I could say YES it will get better, but that would be a lie. However I believe for some people it does get better and I'm happy for them.

Oh, and autism speaks...
I hate you AUTISM SPEAKS. I do not want to be fixed and your dehumanizing message hurts. 
Please stop searching for the magical cure. There is nothing to cure!
Please stop your unethical and misguided therapies, autistic people are not problem - you are! 
Please stop saying that I shouldn't exist. Stop telling the world how people around me have been tragically touched (whatever that means). They are not (and in case they are I want them to disappear and leave me alone anyway!). 

There is enough awareness (especially negative), it's time to move on. Accept everyone as they are. 
So no, I'm not going to light it up blue. I do not suffer from autism. I still do not belong here, but does anyone care?..
Copyright © Lex Kartanė

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All works are copyrighted and not to be used without the permission of the author.
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Safe space for cis people??? WTF??? 

18/10/2014

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This weekend was incredibly productive and inspiring. Anarchist book fair on Saturday and Anarcha-Feminist conference on Sunday. Lovely people, great workshops, and super awesome safe space policy at Anarcha-Feminist conference - cheers and lots of respect for those who worked on it.

Unfortunately even this policy didn't stop some transphobic people to attend the conference and use insulting language towards other attendees. Really disturbing incident happened during the last workshop about gender. . .

Basically we were discussing things about gender, questioning what it is, how to create safe space policy and how not to exclude others from participating. And when someone said that safe space policies put people away, they afraid to speak up, because there is no safe space for "women who were born women"! Me (and hope everyone else!) could not believe what we were hearing!!! Women who were born women, wtf??? Just a few minutes ago people were talking that if someone feels like she is a woman she is a woman, if someone feels like he is a man, he is man, if someone feels like they have no gender, they are agender, etc. etc. And just after that we have someone complaining for no safe space for cis people!!! what next? A safe space for white sic gender heterosexual men? Sounds logical for me.... 
 
Some of us tried to challenge this person and show why this use language is not acceptable (e.g.: guidelines, number 9: avoid transphobic language or behaviour e.g. excluding trans women from discussions aimed at women), but it didn't seem to work. As the every participant signed the safe space policy and have all the their time to inform themselves about the topics or just ask someone if they had questions, it made no sense just to stay and listen to this nonsense I heard so many times. So we've simply left the room. I was really impressed seeing so many of us standing up and just leaving. (In so many other places I go this support does not exist. You try to speak up and others simply silence you. No one else tries to support you or realises oppressive behaviour towards non-cis people...And it makes you feel helpless, so this kind of support at the conference really empowered and inspired to challenge this behaviour again and again!) 

We are learning all our lives. There are lots of things many of us still don't know. We do mistakes and that's fine, but we like to learn from them. Most of people come to those conferences with an open mind, to learn something new, to share their experiences, but not to use insulting language on the purpose as this clearly was the case... : / That is not acceptable! If people are genuine interested to learn, so many people would be more than happy to educate them. Outside of the conference, as one's incompetence should NEVER oppress others.  

All my 2 hours journey home I couldn't stop thinking about this. Why cis people so many times see non cis people as some kind of danger? Why they feel such an urgent need to attend events having a safe space policies and bring their harmful views to the day light? You, cisgender people, have a safe space 24 hours 7 days a week, all your lives! So bringing  your oppressive behaviour to a safe space is beyond everything! I still feel so shocked by this... 
This conference is one of so few places me and so many other people can openly talk about our gender identities, about challenges and discrimination we face every day. A place we could feel safe to open up without a fear of attacks from others...

If you see oppressive behaviour and language towards non cis people please challenge it, show your support even if it does not touch you. Maybe first time you'll be alone, maybe not. But someone needs to start. Someone needs to stop ignoring discrimination people face on their daily basis. That's the only way to stop it. We can't stay silence and just close our eyes. 
Thank you.


Copyright © Lex Kartanė

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All works are copyrighted and not to be used without the permission of the author.
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    AIWS

    AIWS is a strange invention in this planet - a machine with a brush, pen and camera in its hands. It just observes and pictures the sad and cruel reality of everyday life. If You do not get it, do not worry too much, it just means that You are average. But of course You are more than welcome to read, think about and even share Your very important thoughts. Just remember: the majority of humanity does not interest AIWS at all, so please, do not feel offended. It's not You, just Your mediocrity.

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